Although I am currently sitting with one leg up on the coffee table, Robaxacet and a shot of Toradol on board, an icepack on my sciatic nerve One butt cheek propped on a couch cushion, in my new home in the middle of the frozen Arctic It's the most Holy of Holies in our little corner of the disability universe. Blue and yellow will be everywhere and Sedna help us, we are still with the mismatched and "silly" socks.
There will be pride, yes The extra chromosome, the condition , the disability, the whatever-you-want-to-call it, the thing that is Down syndrome, does not preclude one from their humanity, their right to happiness and the ability to seek that happiness. Be loud and goddamned proud. I'm also very aware that I don't get to hold my son every day any more But, that doesn't make me any less involved in his parenting even though I am physically thousands of miles away from him.
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Bullies, Bigots and Buffoons, Oh My. Disabled Americans fighting for the right to save more money. I just haven't had the spoons or the words to say what I've been mulling over. And so am I. That doesn't mean I've faded off into the sunset or wandered off into a northern blizzard if that analogy is more appropriate and to your liking.
Like we all do.
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